I am not sure but a few people have emailed to say that they are having a problem posting comments. I will get Jon to look into that.

[Jon here…I messed that up when I was adding the photo stuff…now it’s fixed…so comment away!]

Speaking of Jon…his pictures are so profound. I do not always like the pics of me (vanity) but I always am impressed with what he captured. Give a look if you get a chance.

I got my petscan and catscan on Wednesday. It took about 3 hours. It went really well this time. The technician Anita remembered me and we had a few nice chats.It is a very freaky thing to be given so much radioactive material. I felt like I would start glowing in the dark. Seriously, like two huge things full of it get pumped into you. I fell asleep in the machine once it started. Anita said most people can not do that. For those of you who have not read the old blogs… I love closed in spaces like that. I hid in the closet ALOT as a child. So I actually find those tests really comforting. The only thing I like more is my dentist. Well all dentistry is pretty fabulous. If I could get dentistry during the MRI/catscan that would perfect. I know I am weird. What can I say.As far as results go I am praying for good news. I really want to hear that the chemo is working well. It seems to me that it is. I will know next week.

This was my good week but not really. I have had a lot going on and still experience a bunch of different symptoms. I wish I was more energetic. I am so tired. I want to feel better than this. I feel really good after acupuncture. But it does not always last as long as I need it to. Also there is a lot going on with my treatment that I am not ready to talk about. I will do that when it is the right time. There are a lot of new and effective treatments out there for both IBC and metastatic disease. Some are trials. I am praying for clarity and wisdom. Please pray for me about this too.

My bald head will be covered in henna on Monday afternoon. Kristine is going with me. I am excited. I was too chicken to get my head tattooed. But the henna will last several weeks and look avant garde. Which is good. Maybe then I will want to go out without my head covered.

I have been asked back on the Dr. Dan Gottlieb show “Voices in the Family” on WHYY. I will be in the studio for an hour. I know the date but I am hesitant to disclose it because I do not want my father or his wife calling in since I do not speak with them but they may read this blog. So feel free to call or email me and ask for the date if you want to tune in.

Another plug for Shayna’s cancer walk. She is still badly in need of donations and support. I would also really appreciate your getting behind this since all proceeds go to cancer research. http://www.the3day.org/philadelphia07/shayna

And a reminder that there is another fundraiser at the M room this Saturday night. Amanda and Vinnie put this together for us and even if you can make it out for a little while we’d love it. Kelly will be there for a while. I will try to be there too. I know some of you were out of town so if you can come out that would be sweet. Our eagle t’s will be there for sale too.

I have less than a week til chemo. I am planning on going to church Sunday and visiting with as many loved ones as possible between now and then. I hope you are all well. I think of you all the time. Call or email me if you want to get a hold of me or need anything. I love you. Andrea


6 Responses to “Update”

  1. Bryan says:

    Hey Kiddo,
    I just got the news from jen @ red hook. I can’t fucking beleive it. I have not seen or heard from you in so long, just saw you the other night driving by the shop, been wondering how you and the clan were. Usually when it has been a long time since you have seen someone you just assume that all is well and life moves on at its steady pace. I am so sorry that I have been so out of touch. We see the kids around town from time to time, they are getting so big. I am going to come out saturday to see you and the fam.
    Miss you, lots of love!

  2. Morgan says:

    Hey there,
    I need your address. We publish a magazine that I forgot about. Its about people and programs in cancer treatment and recovery. (crmagazine.org)I’ll send you all the back issues and the new ones as they come out. I think it’s quarterly. I really should know more about it, but I don’t work on it and I’ve been out on leave — bocking out work.
    I’m proudly sportin my pink & black star tattoo and spreading the word to anyone who will listen.
    Living wrong,

  3. leah says:

    small spaces and the dentist i think you are my long lost sister!
    i’m going to try really hard to get to the benefit on saturday, i had some trauma with my husband getting into an accident on his scooter, i’ll have to find a sitter for him.
    i think the hennah is a great idea! also i’m going to go to shayna’s site right now to make a donation!
    keep up the great work!

  4. d says:

    funny about the dentist…was just showing my hubby your acupuncture pics last night and saying how gorgeous your teeth are. so it figures you enjoy the dentist. the enclosed space thing, though…ughhhh…my chest tightens just thinking about my last MRI!!! how is the lupron going? still getting the shots? i was the biggest bitch ever on that stuff. glad the acupuncture is helping. have you tried shiatsu at all? happy weekend…

  5. Denise says:

    I fall asleep in the MRI and CT machines too. CLANK CLANK CLANK WAO WAO WAO….me asleep. Many think I’m strange for this. Glad to hear your “strange” too. It’s always good to catch a nap where you can.
    Be Well,

  6. Siobhan says:

    haha, my dad falls asleep in the dentist chair and i kind of love it too. i guess it helps that i’ve never had a cavity.
    glad to hear you’re doing well. i need to get my lazy ass out to see you soon. i’m sorry i’ve been a hermit lately. i love you a lot and i look forward to seeing you sunday. lovelovelove.